28 December 2014

#WBDPhotoChallenge list January

It's almost the new year and almost time to start a new #WBDPhotoChallenge list.  It's easy.  Its fun and it's creative. Share your perspective with the world. 


The rules are simple: 
  • Use the challenge list each month (posted here) to inspire one photo each day 
  • Find inspiration in your ordinary (or extraordinary) day! Take a photo. 
  • Share on InstagramFacebookTwitter, or Pinterest  
  • Join the community by tagging with #WBDPhotoChallenge (like and share with others)
  • Have fun!!

The view from here #WBDPhotoChallenge is not unlike other photo-a-day challenges where participants draw inspiration from their ordinary lives, snap a photo and share with others. What is different about the #WBDPhotoChallenge is that each inspired image will be from the perspective of people with disability.

About the #WBDPhotoChallenge and FAQ

Why a photo challenge?
International Wishbone Day is fast approaching with only 5 months to go. The view from here #WBDPhotoChallenge is a fun and creative contribution to our international efforts to bring awareness to the diversity of life with disability.

When you view images from the #WBDPhotoChallenge you will see the world through the eyes of ordinary people with disability.


Who can participate in the #WBDPhotoChallenge?
Anyone with disability can participate in the challenge.


Do my images need to be disability focused?
No. Inspiration for the #WBDPhotoChallenge should be drawn from your ordinary day. The photo challenge will illustrate how ordinary life with disability really is.


Can my images be disability focused?
Of course! Your perspective is the key.


How do I share my #WBDPhotoChallenge photos?
You can share your photos on Instagram, Facebook, Pinterest, or twitter by including the hashtag #WBDPhotoChallenge.  

You can also view other peoples photos by searching for the #WBDPhotoChallenge hashtag.


Will others be able to see my #WBDPhotoChallenge images?
That is up to you. You decide if you share your pictures publicly or privately on your social media site. If you want others to view your #WBDPhotoChallenge (including us) then set your privacy setting on your images to public.


What if I miss a day on the challenge?
No problem. There are no rules to how you participate. If you miss a day or two or a few, don't stress. Just start back when you're ready. You can decide if you post catch-up photos or just start back on the next day. You decide. The idea is to have fun. 


Do I need to sign up?
No. Just start. Post your images with the #WBDPhotoChallenge.


When will the challenge list be available? 
The challenge list will be available on the last Sunday of each month. You'll find the challenge list here on our website.

Want to play?
Get snapping! and share.



Help us add to our FAQ.  What do you want to know about the view from here #WBDPhotoChallenge? (comment below)

04 December 2014

New members of the International OI Community in Pakistan!

On Tuesday 25 November CLAN was proud to partner with colleagues and families at the National Institute of Child Health (NICH) in Karachi to celebrate the launch of Pakistan's first Osteogenesis Imperfecta (OI) Support Club.

With around 16 families gathering to share stories, experiences and questions, this was an important day for connecting and supporting. Families were introduced to efforts internationally to optimise quality of life for children living with OI, and in particular, the fantastic achievements of communities in Vietnam and Indonesia (FOSTEO!!) were communicated. (read the full story)

30 November 2014

#WBDPhotoChallenge list December

Have you been playing along with the #WBDPhotoChallenge?  It's a fun and creative way to share your perspective with the world.  Here is the #WBDPhotoChallenge list for December.




The rules are simple: 
  • Use the challenge list each month (posted here) to inspire one photo each day 
  • Find inspiration in your ordinary (or extraordinary) day! Take a photo. 
  • Share on InstagramFacebookTwitter, or Pinterest  
  • Join the community by tagging with #WBDPhotoChallenge (like and share with others)
  • Have fun!!

The view from here #WBDPhotoChallenge is not unlike other photo-a-day challenges where participants draw inspiration from their ordinary lives, snap a photo and share with others. What is different about the #WBDPhotoChallenge is that each inspired image will be from the perspective of people with disability.

About the #WBDPhotoChallenge and FAQ

Why a photo challenge?
International Day for persons with disability is just 1 month 3 days! away and international Wishbone Day is fast approaching with only 6 months to go. The view from here #WBDPhotoChallenge is a fun and creative contribution to our international efforts to bring awareness to the diversity of life with disability.

When you view images from the #WBDPhotoChallenge you will see the world through the eyes of ordinary people with disability.


Who can participate in the #WBDPhotoChallenge?
Anyone with disability can participate in the challenge.


Do my images need to be disability focused?
No. Inspiration for the #WBDPhotoChallenge should be drawn from your ordinary day. The photo challenge will illustrate how ordinary life with disability really is.


Can my images be disability focused?
Of course! Your perspective is the key.


How do I share my #WBDPhotoChallenge photos?
You can share your photos on Instagram, Facebook, Pinterest, or twitter by including the hashtag #WBDPhotoChallenge.  

You can also view other peoples photos by searching for the #WBDPhotoChallenge hashtag.


Will others be able to see my #WBDPhotoChallenge images?
That is up to you. You decide if you share your pictures publicly or privately on your social media site. If you want others to view your #WBDPhotoChallenge (including us) then set your privacy setting on your images to public.


What if I miss a day on the challenge?
No problem. There are no rules to how you participate. If you miss a day or two or a few, don't stress. Just start back when you're ready. You can decide if you post catch-up photos or just start back on the next day. You decide. The idea is to have fun. 


Do I need to sign up?
No. Just start. Post your images with the #WBDPhotoChallenge.


When will the challenge list be available? 
The challenge list will be available on the last Sunday of each month. You'll find the challenge list here on our website.

Want to play?
Get snapping! and share.



Help us add to our FAQ.  What do you want to know about the view from here #WBDPhotoChallenge? (comment below)

08 November 2014

The view from here: #WBDPhotoChallenge

Help us celebrate the diversity of ordinary people with disability. Play along with the view from here #WBDPhotoChallenge.


    The rules are simple: 
  • Use the challenge list each month (posted here) to inspire one photo each day 
  • Find inspiration in your ordinary (or extraordinary) day! Take a photo. 
  • Share on Instagram, Facebook, Twitter, or Pinterest  
  • Join the community by tagging with #WBDPhotoChallenge (like and share with others)
  • Have fun!!

The view from here #WBDPhotoChallenge is not unlike other photo-a-day challenges where participants draw inspiration from their ordinary lives, snap a photo and share with others. What is different about the #WBDPhotoChallenge is that each inspired image will be from the perspective of people with disability.


About the #WBDPhotoChallenge and FAQ

Why a photo challenge?
International Day for persons with disability is just 1 month away and international Wishbone Day is fast approaching with only 6 months to go. The view from here #WBDPhotoChallenge is a fun and creative contribution to our international efforts to bring awareness to the diversity of life with disability.

When you view images from the #WBDPhotoChallenge you will see the world through the eyes of ordinary people with disability.


Who can participate in the #WBDPhotoChallenge?
Anyone with disability can participate in the challenge.


Do my images need to be disability focused?
No. Inspiration for the #WBDPhotoChallenge should be drawn from your ordinary day. The photo challenge will illustrate how ordinary life with disability really is.


Can my images be disability focused?
Of course! Your perspective is the key.


How do I share my #WBDPhotoChallenge photos?
You can share your photos on Instagram, Facebook, Pinterest, or twitter by including the hashtag #WBDPhotoChallenge.

You can also view other peoples photos by searching for the #WBDPhotoChallenge hashtag.


Will others be able to see my #WBDPhotoChallenge images?
That is up to you. You decide if you share your pictures publicly or privately on your social media site. If you want others to view your #WBDPhotoChallenge (including us) then set your privacy setting on your images to public.


What if I miss a day on the challenge?
No problem. There are no rules to how you participate. If you miss a day or two or a few, don't stress. Just start back when you're ready. You can decide if you post catch-up photos or just start back on the next day. You decide. The idea is to have fun.


Do I need to sign up?
No. Just start. Post your images with the #WBDPhotoChallenge.


When will the challenge list be available?
The challenge list will be available on the last Sunday of each month. You'll find the challenge list here on our website.

Want to play?
Get snapping! and share.



Help us add to our FAQ.  What do you want to know about the view from here #WBDPhotoChallenge? (comment below)

24 October 2014

I wonder what creative spirit will soar for Wishbone Day 2015?



For Wishbone Day 2014 Maleah spread the word on Wishbone Day and OI awareness by creating this terrific video about her life with OI.  Maleah reached audiences worldwide and her video has now been translated into multiple languages!

If you haven't seen it (or even if you have!) you should really watch it.  Here it is ...




Watching Maleah and her video today started us thinking ... I wonder what creative spirit will soar for Wishbone Day 2015?

Take the Wishbone Day challenge! Be creative. Be clever. Be heard.

#WishboneDay #NoFundraising because #AwarenessMakesADifference

24 June 2014

Living with OI by Brendan Doherty


Brendan is 12 years old and has OI. Mr Kennedy is his 5th class teacher at St Patricks Primary School in Tuam, Co. Galway, Ireland. Together, Brendan and Mr Kennedy have been helping students, teachers and parents to learn about what OI is and what living with OI means to Brendan. 

Brendan has been very busy sharing his story with all the classes in his school. This has led to great discussions, particularly among the younger pupils, as to what OI is and what it is like for Brendan to live with OI.  Brendan and Mr Kennedy are excited to share this story with others through the school website. They hope their sharing will inspire others to learn more about OI. Read Brendan's story.

25 April 2014

It's not about the money, money, money...

The other day we posted about getting ready for Wishbone Day. We're using today's post to remind everyone why Wishbone Day is not a fundraising event.


In the video Jessie J (feat B.o.B) sings "It's not about the money, money, money. We don't want your money, money, money. We just wanna make the world dance, forget about the price tag..."
 


What? (I hear you say!)  No money? How can I make a difference to people living with OI?? What is this all about if you don't want the money??

We want you to use Wishbone Day and the Wishbone Day logo to promote awareness and to celebrate our lived experience of OI in all kinds of creative, fun, and exciting ways!!

You'll be amazed at what you can achieve when the focus is on promoting awareness and celebrating life instead of raising money! We were, when we first tried it!....  Magic happens!

Give it a go! and then let us know how it unfolds. We'll post your Wishbone Day stories through the Wishbone Day website for everyone to enjoy.





Ok, Ok but what if ... I still want to raise money? -  If you do want to do a fundraising event on another day, please contact your local OI Foundation or Association. We know they'd love your energy and support! If you're not sure how to contact your local OI Association check out our links page or drop us an email and we'll help you locate an OI association that can support you.

Great, but what if ... my awareness event just happens to raise some money? - We know that there are times when the natural process of awareness sometimes leads to funds being generated. Many times once people have had fun at a Wishbone Day event they naturally want to contribute further.  When this happens you should tell them that your local OI foundation would love to hear from them!  You could also make arrangements with your local OI association or contact your local rotary club to partner your event.

Rotary?  Why should I contact them?  You can learn more about how Rotary can assist the growth and development of Wishbone Day here. It is uber important to include your local Rotary when there are any monies involved.  Wishbone Day is a global event with varying laws and regulations in various countries around the world. Our Rotary partners will ensure that when funds are raised through Wishbone Day that they remain secure and are used to support legitimate and recognised OI programs worldwide.

Rotary are also one of the largest community organisations in the world so involving Rotary in as many ways as possible gives us great potential to make a difference worldwide!

Leave us a comment and let us know how your Wishbone Day event goes and don't forget to share with your family and friends!


(First published 22 April 2012)

14 April 2014

Me, Myself and OI

We asked you to share your Wishbone Day, your way. This is a fantastic example. 
Maleah asks us to spread the word and share the clip. Let's do it! Share it at school, at work or at home. Because awareness makes a difference.


Do you cast shadows or open doors?

If you think awareness isn't enough ... just ask any person living with OI (or any other person labelled with disability) what awareness means to them.

In the video below, Aimee Mullins talks about the power of words and how words shape our thinking and influence how we relate to each other.

As you watch the video, please consider what reality you want to inspire. Do you cast shadows or open doors?


Wishbone Day is an opportunity for us to challenge assumptions, alter realities and create new possibilities.  How will you use Wishbone Day to open doors?

Please email us and let us know what you have planned.
Because awareness makes a difference!

(Original post: 9 April 2012) 

Sean Stephenson -- Living the Good Life with OI!


In celebration of Wishbone Day: International OI Awareness on May 6th, 2014 Sean Stephenson will host a free educational webinar (online video class) about how to successfully navigate life with OI. On this program he will to share his personal perspective of successfully growing up and living large with OI.    
To find out more about this exciting first time event visit:  www.seanstephenson.com

09 April 2014

All Yellow Wishbone Day roads should lead to home

We're excited to see so much Wishbone Day awareness creeping across the world to raise awareness for OI ... Wishbone Day is only a couple of weeks away and this year is guaranteed to be the biggest yet!  

You can help to grow it even bigger. Keep your message simple and clear - and remember to always link your Wishbone Day messages back to Wishbone Day www.wishboneday.com/

Linking back to Wishbone Day will help us to grow a strong and united community across the world, ensure that people everywhere know how to find us and will keep Wishbone Day moving in the right direction.  

All Yellow Wishbone Day roads should lead back home

Tag us on Facebook, Twitter, Instagram and Pinterest using @WishboneDay or #WishboneDay. 
Remember if you are using the Wishbone Day logo to check out our image conditions of use.   
You'll also find a list of OI associations around the world for more support.

Got questions? hit up the comments section below and I'll make sure I respond asap!

Happy Wishbone Day!


06 April 2014

21 March 2014

Wishbone Day Sydney 2014 -- Come and say hello




Wishbone Day 2014 is fast approaching!

Don't let our friends, family and colleague miss the opportunity to get involved with Wishbone Day this year. Take the time to invite all those new to your networks to be an active part of our Wishbone Day family.  Sharing is caring!


Join one of the many Wishbone Day celebrations around the world.  Why not drop in on Wishbone Day celebrations in Southbank Brisbane on the 3rd May or if you're in Sydney head on down to Darling Harbour on Sunday the 4th May.  Come and say hello!  Don't forget to get your yellow on!!  Because awareness makes a difference!  If there isn't a Wishbone Day celebration near where you live consider starting your own unique Wishbone Day tradition!  

How will you celebrate Wishbone Day 2014? 




31 January 2014

The spirit of Wishbone Day


There is a growing Wishbone Day buzz in the air!  Individuals and groups worldwide are beginning to plan special events and contributions to this global awareness effort.  We thought now was a good time to share how Wishbone Day started and what it stands for.  




Why not drop us a line and let us know what you have planned for Wishbone Day 2014.  Join us on Facebook, twitter, or pinterest for more updates.


[Transcript]
What is Wishbone Day?

Wishbone Day is an international community awareness effort to raise awareness of Osteogenesis Imperfecta (OI) otherwise known as brittle bones.

[Jo Ragen - Founder of Wishbone Day] Wishbone Day started in 2008.  The OI Society of Australia had a conference and it was really interested in trying to get members engaged in different ways. To look at new ways of getting people to engaged with the society but also to figure out what people wanted from a network of people.  I was invited to do a session on ‘what was possible’ just to get some ideas really.  It wasn't really to do anything other than to get ideas and to figure out what people wanted. As a result of that session we had lots of suggestions [from all the groups] about how to move forward.  The suggestions that came up was that there needed to be more awareness around OI.

[Sharon and Allan Sparkl - parents of Hayley who has OI]  
[Sharon Sparkl] It's close to our heart. At the OI conference back in 2008, Jo did a brain storming session of what we would like to see in a perfect world and, how we can get OI out into the world.  Our little group ...

[Allan Sparkl] We probably had 1/2 dozen in our little group, and everyone just threw a few ideas backwards and forwards, and I guess we [all the groups] came up with more awareness and getting it out there. 

[Sharon Sparkl] We decided that there needed to be more awareness of what OI is.

[Allan Sparkl] There are a lot of other weeks out there with awareness.  Like national breast cancer week and there is jeans for genes day and walk to work day and all that kind of thing so, why not us? Why can’t we organise something that had a little bit of spotlight on Osteogenesis Imperfecta and the people that are living with that?

[Sharon Sparkl] We needed a catch phrase.  We needed something catchy and we [the groups] thought Wishbone Day was the perfect one to go with. And then we left, and we felt on a high. We were really inspired by it.  And then the next thing, Jo loved the idea and she has just taken the ball and kept it rolling.

[Allan Sparkl] Yes, it started off as a pretty casual suggestion. And everyone just threw in a couple of little ideas and stuff to go with that, and it just grew legs and it just snowballed.  When Jo came back and said 'we’ve got something here and we can really run with it', it just felt so satisfying.

[Jo Ragen]  When you ask people to engage with Wishbone Day, the first response if they haven't heard of it before is, ‘how much money do you want?’

Wishbone Day is not a fundraising event …

[Jo Ragen] So if you are creating opportunities for people to make different choices about how they engage with OI [through Wishbone Day it will be OI] they do stop and they think, well what have I got to contribute? And most people want to contribute. But as a world, as a society, we have created these easy options were you can throw a couple of bucks [dollars] into a bucket and you can go away feeling good. But actually, you haven’t done much to change peoples attitudes.  

By taking out the fundraising, what it actually does is have people stop and say ‘well what is it that you need?’  And what we want is to be accepted and to be valued members of our community.  So when they don’t have the option to give money they then say, well what is it?  They will spend more time learning what Wishbone Day is about, what it means to live a life with OI and who is the person that they are supporting.

[Jodie Owen]  It’s taken off so much. All around the world. Some people just go crazy and all-out to celebrate.  They paint their fingernails and everything. It’s such a great and positive thing to see. 

[Andrew Longhurst]  What I like about it is that it’s not about getting money or raising money. Its about awareness.  And I am all for that.

[Julie Stonestreet]  Wishbone Day is such an important day for us because it is a day when we can come together and really really celebrate how fabulous all our OI family are. We love love having Wishbone Day.

[Jo Ragen]  Its about recognising people for who they are, just as they are.  How can we own that?  How can one person own that? 

Wishbone Day is not an organisation.  It is an awareness day.  Everyone owns a piece of it. So when you celebrate it, when you take it on in your community it becomes part of your community. It becomes part of the make up of everyone who is involved.

[Fiona Winters]  Wishbone Day means to me a day of happiness and awareness for OI.  I have had OI all my life and now I have been blessed with three beautiful children and I never thought that would happen.  But with, advances in technology and people being aware of it, it makes life a lot easier.

[Melinda Montgomery]  I think for me because it is an awareness thing, I am big on educating people and dispelling all those terrible myths that there are about having osteogenesis imperfecta.  I think growing up as a child everyone was quite scared of me and there is no need to be. So, I think it is this, bringing that positive education that we can have a life just like anybody else.

[Jo Ragen]  The way that awareness days are normally put out into the world is about raising money for a cure. Wishbone Day is about recognising and respecting people for who they are, just as they are.

Through positive awareness we can highlight the need for better access, greater understanding and acceptance and how communities can make a difference through their actions and decisions.

[Children with OI]  Why is Wishbone Day Important?  Because awareness makes a difference!


For more information visit www.wishboneday.com

01 January 2014

We're turning 5!

Can you believe that there is only 126 days until Wishbone Day 2014!  and this year is extra special.  We're turning 5!  We want you to help us celebrate like never before. Get your yellow on and start making plans.  Lets make this Wishbone Day one to remember!