Have you joined our Wishbone Day tribe?

Be part of the big Wishbone Day picture!! -- share with us your Wishbone Day photos, videos or posts by tagging our social media pages @Wishbone Day or #WishboneDay on facebook, Instagram or twitter!  We can't see your posts unless you share them with us! 

Facebook @WishboneDay

Instagram @WishboneDay or #WishboneDay

Twitter @WishboneDay or #WishboneDay

Send us your photos! Join our tribe.

Once we were one. Now we are many!

This week we welcome new Wishbone Day friends in China!

Wishbone Day China.  Image Credit: Wen Liu

Unbreakable: A film by Rebecca Kirwan

Body Positivity with Abby Green

Abby Green talks about finding body confidence as a young woman with OI:

"When you see a picture of someone who look fierce, its because they know that they're fierce! ... so the moment you accept yourself for what a babe you are, the hotter you're going to be".

Wishbone Day.  Because awareness makes a difference!

You're invited -- Wishbone Day Jakarta

Sexuality, Disability & the Journey to Inner Freedom by Gaelynn Lea

If fundraising is your motivation for taking part in Wishbone Day, you've missed the point.

Wishbone Day is not a fundraising event. It is not a missed opportunity to raise money. If fundraising is your motivation for taking part, you've missed the point.

Every year in the lead up to Wishbone Day I am asked about why Wishbone Day is not a fundraising event. People often question it's design as a missed opportunity to raise money -- the typical purpose of awareness campaigns -- especially for those surrounding disability.

So let me explain.

People with OI, their families and friends created Wishbone Day. They wanted to be listened too. They wanted to be acknowledged and taken seriously. But most of all they wanted a community in which they were connected and that they belonged. Wishbone Day was created as a platform on which these voices could be heard and that communities could be built.

Fundraising was very deliberately left out of the Wishbone Day design and intention. Because if you couldn’t fundraise, there would be an opportunity to do something else:

When Wishbone Day was created it was an invitation to the world to join our OI community – and to become one with us. It was an invitation to have conversations about who we are and what matters most, and to have others really listen and to understand. It was an invitation to play with us, to work with us, to eat with us, to accept and love us, and to celebrate with us! It was an invitation to create together a community in which we all truly belonged.

Wishbone Day was a new beginning. And in accepting the Wishbone Day invitation you choose to become one with us. On Wishbone Day we ask that you join with us as equals … not to cure us or to make us better … but to really be with us … to celebrate all that we are together, right here, right now. Enough. Just as we are.

Wishbone Day yellow shines with optimism and carries that promise of a positive future. It really is that simple.

#WishboneDay

Happy Wishbone Day!

Jo Ragen

Need a Little Big Shot to follow? this is your guy!

I'm not afraid
To take a stand
Everybody
Come take my hand
We'll walk this road together
Through the storm
Whatever weather, cold or warm,
Just letting you know that you're
Not alone
Holler if you feel like you're been
Down the same road

If you need a Little Big Shot to follow, this is your guy!
and remember, Wishbone Day is coming! May 6th.

Awareness makes a difference

Becoming a scientist

Jazzy is 5 years old and is well on her way to becoming a scientist. Last week she had some pretty hardcore spinal surgery, but this week she was back to work and raising awareness for OI and The Children's Hospital at Westmead Bandaged Bear Appeal, while also pumping out some awesome science moves on the TODAY show. Give her a thumps up! Because #AwarenessMakesADifference! Remember, #WishboneDay is just around the corner.

Jo Ragen finalist 2015 National Disability Awards

Today, many more people in Australia have learned about Wishbone Day and OI. Jo Ragen was a finalist for the 2015 National Disability Awards recognised for Excellence in Advocacy in celebration of International Day of People with Disability.

Image: Jo Ragen, Founding organiser of Wishbone Day being awarded for Excellence in Advocacy by Assistant Minister Alan Tudge at the 2015 National Disability Awards, Parliament House Canberra.

The Hon Christian Porter MP, Minister for Social Services said "the Awards are a fantastic celebration of the many achievements of Australians with disability and a vital part of the Commonwealth Government's celebration of International Day of People with Disability ... Thank you for your dedication and leadership - it is greatly appreciated and admired".

Read more:


National Disability Awards to be presented tonight in Canberra

National Disability Awards: Meet three finalists improving the lives of people with disabilities

Sharing real stories of people with disability

Finalists announced for 2015 National Disability Awards

Wishbone Day 2015

Wishbone Day is the largest community awareness effort EVER for osteogenesis imperfecta (OI). It has grown in size every year since it began in 2010. Thanks to all who shared their Wishbone Day spirit this year by tagging Wishbone Day in photos and stories, we bring to you this snapshot of Wishbone Day 2015.

Why is Wishbone Day important? Because awareness makes a difference!!  

Waterdown family's bond unbreakable

Zooey's parents were investigated for child abuse. A common story for families with OI. Why is Wishbone Day important? Because awareness makes a difference!

From the Flamborough Review
By Catherine Ohara

She’s only 23 months old, yet she has suffered 27 bone fractures. Despite her many injuries, Zooey Schneider’s spirit remains unbreakable. At a glance, you wouldn’t know that Zooey lives with a rare genetic condition. The adorable toddler is all smiles as she prepares to dig into her Happy Meal at the McDonald’s location on Parkside Drive. Her smile grows wider as she is presented with a colourful plastic figurine with yellow wings that match her bright t-shirt and floral headband. Read their whole story: Waterdown family's bond unbreakable

Happy Wishbone Day to our friends in Pakistan!

 A huge Congratulations to our friends in Pakistan for their first official Wishbone Day in Karachi.  Thank you to all who helped to create such a powerful event.  Awareness makes a difference!

HUGE celebrations for the #OI Community in Pakistan on @WishboneDay! Sincerest thanks #Australia @dfat for attending pic.twitter.com/9aAG8s3VtJ

— CLAN CHILD HEALTH (@clanchildhealth) May 6, 2015

Wishbone Day is coming. Get your yellow on!

World Nomads - Meet Mitch

Meet Mitch St. Pierre, a Canadian filmmaker with OI who decided to leave his home country and set up in the decidedly more adventurous surroundings of Siem Reap, Cambodia.

Post by World Nomads.

Did you know?

Did you know that many children with OI (brittle bones) are misdiagnosed as 'abused children'? Awareness makes a difference! Help us to get the word out by joining our growing Wishbone Day community on Facebook, Twitter, and Instagram.  

Like, share and invite two of your friends to do the same!  

New members of the International OI Community in Pakistan!

On Tuesday 25 November CLAN was proud to partner with colleagues and families at the National Institute of Child Health (NICH) in Karachi to celebrate the launch of Pakistan's first Osteogenesis Imperfecta (OI) Support Club.

With around 16 families gathering to share stories, experiences and questions, this was an important day for connecting and supporting. Families were introduced to efforts internationally to optimise quality of life for children living with OI, and in particular, the fantastic achievements of communities in Vietnam and Indonesia (FOSTEO!!) were communicated. (read the full story)

I wonder what creative spirit will soar for Wishbone Day 2015?

For Wishbone Day 2014 Maleah spread the word on Wishbone Day and OI awareness by creating this terrific video about her life with OI.  Maleah reached audiences worldwide and her video has now been translated into multiple languages!

If you haven't seen it (or even if you have!) you should really watch it.  Here it is ...

Watching Maleah and her video today started us thinking ... I wonder what creative spirit will soar for Wishbone Day 2015?

Take the Wishbone Day challenge! Be creative. Be clever. Be heard.

#WishboneDay #NoFundraising because #AwarenessMakesADifference

Sean Stephenson -- Living the Good Life with OI!

In celebration of Wishbone Day: International OI Awareness on May 6th, 2014 Sean Stephenson will host a free educational webinar (online video class) about how to successfully navigate life with OI. On this program he will to share his personal perspective of successfully growing up and living large with OI.    

To find out more about this exciting first time event visit:  www.seanstephenson.com

All Yellow Wishbone Day roads should lead to home

We're excited to see so much Wishbone Day awareness creeping across the world to raise awareness for OI ... Wishbone Day is only a couple of weeks away and this year is guaranteed to be the biggest yet!  

You can help to grow it even bigger. Keep your message simple and clear - and remember to always link your Wishbone Day messages back to Wishbone Day www.wishboneday.com/

Linking back to Wishbone Day will help us to grow a strong and united community across the world, ensure that people everywhere know how to find us and will keep Wishbone Day moving in the right direction.  

All Yellow Wishbone Day roads should lead back home

www.wishboneday.com

Tag us on Facebook, Twitter, Instagram and Pinterest using @WishboneDay or #WishboneDay. 

Remember if you are using the Wishbone Day logo to check out our image conditions of use.   

You'll also find a list of OI associations around the world for more support.

Got questions? hit up the comments section below and I'll make sure I respond asap!

Happy Wishbone Day!