06 February 2018

You are beautiful!

By Stacy Mason

At the end of last year I was chosen to be a model for a photo exhibit called Embrace Your Body. This exhibit featured glamorous pictures of many beautiful women with all different body types beyond the stereotypical "magazine model." I was the only woman chosen who uses a wheelchair.

I decided to do the exhibit for my myself and for my daughter. We both have Type 5 OI. As most of you know, having OI usually means having deformities and not looking "normal." I have struggled with accepting parts of my body for a long time. My right leg is my most hated. I broke it so many times in late elementary school/beginning of middle school. It was in a cast so many times it's significantly shorter then the other. I was/am a chronic leg crosser which with soft bones meant that leg eventually curved around the other leg which is why it has a significant curve to it. Its the main reason you will rarely find me wearing anything that shows my legs. I know my spine is very curved and as a result I have a noticeable "hunch back" and I know my arms are not straight in the slightest either, but for some reason its my legs that I want to hide.

My daughter will be 5 soon, and she already has some unique characters about her body. Its my job to show her she is beautiful no matter what, but how can I do that when I struggle with it myself? So, I went way outside my comfort zone and did this.

 

I felt beautiful (but nervous!!!) and these photos are gorgeous, if I do say so myself! I hope my confidence to share my body and embrace it will encourage others in this community who may be struggling to love themselves too. You are beautiful and you are worth it!

(Click to follow Stacy on Facebook)

17 January 2018

Mummy on Wheels

On Saturday we shared Unbreakable: a film by Rebecca Kirwan, which is a short documentary about Jodie, and her husband Todd. If you missed it you can catch up here.  The documentary ends with the question, what next for Jodie and Todd?

Today we congratulate Jodie and Todd on the safe arrival of Ethan, their first baby boy.

Mum, bub and Daddy are all doing well.

You can follow Jodie's story from her Facebook page Mummy on Wheels.

 

16 November 2017

Trents Aboriginal Art



I created this design last year to show our journey with our son and to help raise awareness of his medical condition Osteogensis Imperfect Type III Severe, and with the help from an amazing friend of ours Bree Sauer from Fresh Start Professional Healthcare who is also our son's Exercise Physiologist, RockTape Australia printed this art work on there RockTape. Proud was an understatement I can not describe how proud my family an I were to see this happen. To help Raise awearness of my son and my partners medical condition is somthing im very passionate about and so is our son's best friend Miss Nini. Please read her storie below. Goannas "Rocky" RockTape 🥊 🥊 Tahlia Earle has a massive passion for exercise including martial arts, footy, and boxing!! She is 9 years old and uses rocktape regularly for her knees. The artist of her favourite design "Goannas" is her best friend's dad, Trent Squires. She was so proud of the story behind the design she wanted to show everyone by having the design on her gloves. People ask her about it then she tells them the story of Marcellus who she loves so much! She really wants the awareness of Osteogenesis Imperfecta (OI) out there. 🦎🦎 Tahlia reckons having the rocktape on her wrist will give her strength to hit like a rock 🥊 **Osteogenesis Imperfecta (OI), commonly known as Brittle Bones, is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. A person with OI may have just a few or as many as several hundred fractures in a lifetime. 💛 #gostrongerlonger #rocktapeaustralia #freshstartprofessionalhealthcare #goannas
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