16 November 2017

Trents Aboriginal Art



I created this design last year to show our journey with our son and to help raise awareness of his medical condition Osteogensis Imperfect Type III Severe, and with the help from an amazing friend of ours Bree Sauer from Fresh Start Professional Healthcare who is also our son's Exercise Physiologist, RockTape Australia printed this art work on there RockTape. Proud was an understatement I can not describe how proud my family an I were to see this happen. To help Raise awearness of my son and my partners medical condition is somthing im very passionate about and so is our son's best friend Miss Nini. Please read her storie below. Goannas "Rocky" RockTape 🥊 🥊 Tahlia Earle has a massive passion for exercise including martial arts, footy, and boxing!! She is 9 years old and uses rocktape regularly for her knees. The artist of her favourite design "Goannas" is her best friend's dad, Trent Squires. She was so proud of the story behind the design she wanted to show everyone by having the design on her gloves. People ask her about it then she tells them the story of Marcellus who she loves so much! She really wants the awareness of Osteogenesis Imperfecta (OI) out there. 🦎🦎 Tahlia reckons having the rocktape on her wrist will give her strength to hit like a rock 🥊 **Osteogenesis Imperfecta (OI), commonly known as Brittle Bones, is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. A person with OI may have just a few or as many as several hundred fractures in a lifetime. 💛 #gostrongerlonger #rocktapeaustralia #freshstartprofessionalhealthcare #goannas
A post shared by Trent (@trentsaboriginalart) on

21 May 2017

Wishbone Day 2017 celebrations in Jakarta!

2017 was the year Indonesia celebrated a new generation of walkers... This special report by Jo Freeman and Dr Aman Pulungan speaks to the incredible change being driven by caring doctors, committed families, generous sponsors and passionate supporters, all working together so #EVERYchild in Indonesia might enjoy life to their fullest capacity!  

08 May 2017

A Wishbone Day march through the streets of Ghana

Wishbone Day was a new beginning for families and friends living with OI in Ghana. On Wishbone Day, 6th May 2017 the OI Foundation Ghana was launched. Wishbone Day was their day of liberation. Together we stand in solidarity.

Awareness makes a difference!
For more information:  www.oifghana.org




07 May 2017

Body Positivity with Abby Green

Abby Green talks about finding body confidence as a young woman with OI:

"When you see a picture of someone who look fierce, its because they know that they're fierce! ... so the moment you accept yourself for what a babe you are, the hotter you're going to be".





Wishbone Day.  Because awareness makes a difference!

05 May 2017

Brisbane lights up for Wishbone Day

Brisbane lights up for Wishbone Day!  The Victoria Bridge and Story Bridge at South Bank Brisbane will light up yellow for Wishbone Day on May 6th.  You're invited for a picnic at South bank from 4pm.  Wear yellow and bring your own picnic for the light up at about 5.15pm.




01 May 2017

The truth about growing up disabled by Dylan Alcott

We’re excited to announce that Dylan Alcott was today announced as 2017 Patron for  International Day of People with Disability. Dylan is one of Australia’s most successful and well recognised Paralympians. Dylan said that as Patron, he will be inviting everyone to continue a national conversation about what we can all do to normalise disability.

"Disability remains this thing that nobody really wants to talk about. There is still this negative stigma that having a disability is this weird, unlucky and really ugly thing. For kids with disability that don't have any confidence, its really really hard for them to get over this [stigma] and to get into the world to do what they want to do.  It [negative stigma] really restricts everything that they want to achieve"...   
"I think it is really important moving forward that we as a society change our perceptions of disability away from this idea that disability is this really bad, unlucky, and weird thing and stop being so scared to talk about it.  We need to realise that its ok to have any disability.  We need to further our expectations of what people with disability can really do".  [Dylan Alcott]



We stand with Dylan on addressing negative stigma. We invite everyone to have conversations that challenge their own perceptions of disability and to further their expectations of what people with disability can really do!

Join the conversation!!

#WishboneDay

23 April 2017

Will you join us for Wishbone Day?

Every year in the lead up to Wishbone Day I am asked about why Wishbone Day is not a fundraising event. People often question it's design as a missed opportunity to raise money -- the typical purpose of awareness campaigns -- especially for those surrounding disability.

So let me explain.

People with OI, their families and friends created Wishbone Day. They wanted to be listened too. They wanted to be acknowledged and taken seriously. But most of all they wanted a community in which they were connected and that they belonged. Wishbone Day was created as a platform on which these voices could be heard and that communities could be built.

Fundraising was very deliberately left out of the Wishbone Day design and intention. Because if you couldn’t fundraise, what could you do instead?

When Wishbone Day was created it was an invitation to the world to join our OI community – and to become one with us. It was an invitation to have conversations about who we are and what matters most, and to have others really listen and to understand. It was an invitation to play with us, to work with us, to eat with us, to accept and love us, and to celebrate with us! It was an invitation to create together a community in which we all truly belonged.

Wishbone Day was a new beginning. And in accepting the Wishbone Day invitation you choose to become one with us. On Wishbone Day we ask that you join with us as equals … not to cure us or to make us better … but to really be with us … to celebrate all that we are together, right here, right now. Enough. Just as we are.

Wishbone Day yellow shines with optimism and carries that promise of a positive future. It really is that simple.

Awareness makes a difference.
#WishboneDay

Happy Wishbone Day!
Jo Ragen


28 March 2017

Need a Little Big Shot to follow? this is your guy!

I'm not afraid
To take a stand
Everybody
Come take my hand
We'll walk this road together
Through the storm
Whatever weather, cold or warm,
Just letting you know that you're
Not alone
Holler if you feel like you're been
Down the same road

If you need a Little Big Shot to follow, this is your guy!
and remember, Wishbone Day is coming! May 6th.

01 March 2017

Becoming a scientist

Jazzy is 5 years old and is well on her way to becoming a scientist. Last week she had some pretty hardcore spinal surgery, but this week she was back to work and raising awareness for OI and The Children's Hospital at Westmead Bandaged Bear Appeal, while also pumping out some awesome science moves on the TODAY show. Give her a thumps up! Because #AwarenessMakesADifference! Remember, #WishboneDay is just around the corner.