04 December 2014

New members of the International OI Community in Pakistan!

On Tuesday 25 November CLAN was proud to partner with colleagues and families at the National Institute of Child Health (NICH) in Karachi to celebrate the launch of Pakistan's first Osteogenesis Imperfecta (OI) Support Club.

With around 16 families gathering to share stories, experiences and questions, this was an important day for connecting and supporting. Families were introduced to efforts internationally to optimise quality of life for children living with OI, and in particular, the fantastic achievements of communities in Vietnam and Indonesia (FOSTEO!!) were communicated. (read the full story)

No comments: